Converse us: have you ever donated your health info to UK Biobank? – Guardian

converse-us:-have-you-ever-donated-your-health-info-to-uk-biobank?-–-guardian

We would fancy to listen to from of us that donated their health info to UK Biobank. The Guardian has printed that a team of “trot science” researchers train to have obtained a “huge” haul of the records UK Biobank holds.

UK Biobank says compare the utilization of its records must be “within the general public pastime”. Angela Saini, author of a book on trot science, says: “If there were pleasant researchers who’ve handed them the records that means that’s an mountainous breach of requirements and it must be investigated by UK Biobank. That’s a minimal that everyday of us have to be in a neighborhood to anticipate that their records isn’t archaic for execrable capabilities.”

We’d also fancy to listen to of us’s thoughts on how their health records is archaic, shared, and saved stable.

Attain you’ve a watch on this imaginable breach of controls on UK Biobank records?

“,”steered”:”Fragment your expertise”,”contacts”:[{[{“name”:”whatsapp”,”designate”:”+447766780300″,”urlPrefix”:”https://wa.me/”,”guidance”:”https://www.theguardian.com/records/2015/aug/12/whatsapp-sharing-tales-with-the-guardian”}],”displayOnSensitive”:counterfeit,”elementId”:”f3381f80-1ffb-47cb-82f9-aad1f14fb485″,”title”:”Fragment your watch”,”isNonCollapsible”:authorized,”formFields”:[{[{“_type”:”mannequin.dotcomrendering.pageElements.CalloutFormFieldBase”,”name”:”name”,”identity”:”175222335″,”hideLabel”:counterfeit,”designate”:”Determine”,”hidden”:counterfeit,”form”:”text”,”required”:authorized},{“_type”:”mannequin.dotcomrendering.pageElements.CalloutFormFieldBase”,”name”:”where_do_you_live”,”identity”:”175222336″,”hideLabel”:counterfeit,”designate”:”Where attain you reside?”,”hidden”:counterfeit,”form”:”text”,”required”:authorized},{“_type”:”mannequin.dotcomrendering.pageElements.CalloutFormFieldBase”,”name”:”tell_us_a_bit_about_yourself_eg_age_and_what_you_do_for_a_living”,”identity”:”175222337″,”hideLabel”:counterfeit,”designate”:”Converse us a runt about yourself (e.g. age and what you attain for a residing)”,”hidden”:counterfeit,”form”:”text”,”required”:counterfeit},{“_type”:”mannequin.dotcomrendering.pageElements.CalloutFormFieldRadio”,”name”:”have_you_donated_your_health_information_to_uk_biobank”,”options”:[{[{“designate”:”Yes”,”designate”:”Yes”},{“designate”:”No”,”designate”:”No”}],”identity”:”175223085″,”hideLabel”:counterfeit,”designate”:”Earn you donated your health info to UK Biobank?”,”hidden”:counterfeit,”form”:”radio”,”required”:authorized},{“_type”:”mannequin.dotcomrendering.pageElements.CalloutFormFieldBase”,”name”:”share_your_view_on_a_possible_breach_of_controls_on_uk_biobank_data_”,”description”:”Please be explicit and contain as mighty ingredient as imaginable. “,”identity”:”175222338″,”hideLabel”:counterfeit,”designate”:”Fragment your watch on a imaginable breach of controls on UK Biobank records “,”hidden”:counterfeit,”form”:”textarea”,”required”:authorized},{“_type”:”mannequin.dotcomrendering.pageElements.CalloutFormFieldBase”,”name”:”what_is_your_view_on_how_your_health_data_is_used_shared_and_kept_secure”,”description”:”Please be explicit and contain as mighty ingredient as imaginable. “,”identity”:”175243693″,”hideLabel”:counterfeit,”designate”:”What is your watch on how your health records is archaic, shared and saved stable?”,”hidden”:counterfeit,”form”:”textarea”,”required”:authorized},{“_type”:”mannequin.dotcomrendering.pageElements.CalloutFormFieldBase”,”name”:”if_you_are_happy_to_please_upload_a_photo_of_yourself_here”,”identity”:”175222341″,”hideLabel”:counterfeit,”designate”:”For folk that is also happy to, please upload a report of yourself here”,”hidden”:counterfeit,”form”:”file”,”required”:counterfeit},{“_type”:”mannequin.dotcomrendering.pageElements.CalloutFormFieldRadio”,”name”:”can_we_publish_your_response”,”options”:[{[{“designate”:”Yes, fully”,”designate”:”Yes, fully”},{“designate”:”Yes, however contact me first”,”designate”:”Yes, however contact me first”},{“designate”:”Yes, however please preserve me nameless”,”designate”:”Yes, however please preserve me nameless”},{“designate”:”No, here’s info excellent”,”designate”:”No, here’s info excellent”}],”identity”:”175222342″,”hideLabel”:counterfeit,”designate”:”Attain we put up your response?”,”hidden”:counterfeit,”form”:”radio”,”required”:authorized},{“_type”:”mannequin.dotcomrendering.pageElements.CalloutFormFieldBase”,”name”:”phone_number”,”description”:”Your contact facts are vital so we’re going to contact you for extra info. They’ll excellent be considered by the Guardian.”,”identity”:”175222343″,”hideLabel”:counterfeit,”designate”:”Phone quantity”,”hidden”:counterfeit,”form”:”text”,”required”:counterfeit},{“_type”:”mannequin.dotcomrendering.pageElements.CalloutFormFieldBase”,”name”:”email_address_”,”description”:”Your contact facts are vital so we’re going to contact you for extra info. 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Fragment your expertise

Attain you’ve a watch on this imaginable breach of controls on UK Biobank records?

Please portion your fable even as you furthermore mght will likely be 18 or over, anonymously even as you prefer. For added info please observe our phrases of service and privateness coverage.

Your responses, which is in a neighborhood to be nameless, are stable because the hold is encrypted and excellent the Guardian has salvage entry to to your contributions. We can excellent use the records you present us for the explanation for the aim and we’re going to delete any non-public records when we no longer require it for this cause. For authorized anonymity please use our SecureDrop service as any other.

Determine

Where attain you reside?

Converse us a runt about yourself (e.g. age and what you attain for a residing) Non-compulsory

Fragment your watch on a imaginable breach of controls on UK Biobank records

Please be explicit and contain as mighty ingredient as imaginable.

What is your watch on how your health records is archaic, shared and saved stable?

Please be explicit and contain as mighty ingredient as imaginable.

For folk that is also happy to, please upload a report of yourself here Non-compulsory

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For folk that contain various of us’s names please take a look at them first.

By submitting your response, you furthermore mght will likely be agreeing to portion your facts with us for this purpose.

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